BROTHERS Adam Griffiths and Matt Potts need some extra community support to help them achieve their dream.
The Collingwood Park brothers have a fatal condition known as Duchenne muscular dystrophy and need a new special-needs van that their mother and full-time carer Anne Potts can drive them to medical appointments and other excursions.
Their present van is 12-years old and its failing suspension system means Adam, 30, and Matt, 22, feel every bump in the road - which is bad for their internal organs.
Family friend Karen Madders has a dream to see the brothers raise enough funds to purchase a new vehicle.
That is why she has entered the January "Sunsuper Dreams For A Better World" competition.
Members of the community can vote for the dream and each month Sunsuper gives out a $5000 grant to the dream with the most votes.
Karen has already helped raise $12,000 through the Everyday Hero program and other fundraisers. But that is well short of the money needed for a new van.
Adam said Karen "has put in a lot of work" and her caring attitude was much appreciated.
"We couldn't do this without her," he said.
Duchenne is caused by a gene mutation which results in progressive wasting of the body's muscles and paralysis.
The condition is terminal and the brothers have lost many friends to Duchenne already.
"It works its way through your lungs and heart, so you have to keep an eye on how it is progressing," Adam said.
"It is a slow progression but by the time I was 12 I was confined to a chair because I couldn't weight bear any more."
It is a slow progression but by the time I was 12 I was confined to a chair because I couldn't weight bear any more.
Both brothers are pursuing educations - Adam is doing graphic design and Matt is studying IT at TAFE. Anne said her sons were positive people but needed to be "out in the community".
"The van we have now is rough and it is the boys' dream to have a better vehicle to get around in," she said.
"We are doing it for them. There is nothing wrong with their minds. They are intelligent...but they need to be out and about."
Visit sunsuperdreams.com.au to vote for Karen's dream.
- Duchenne muscular dystrophy is a fatal condition.
- It affects 1 in 3600 boys.
- Life expectancy of sufferers varies.
This ground floor apartment in coveted Kate Street in Alexandra Headland's 'golden triangle' offers an entry level opportunity to buy into one of Alex's most...
In a complex of this size location and position is a must! This unit offers ocean views off the third floor North facing balcony combined with views of...
Built in 1914, this 2 bedroom workers cottage sits on 909sqm block with mountain views. This quaint home has original character features with TandG walls for a...
This one of a kind home is packed with features like sweeping high raked ceilings throughout the spacious open plan living areas and its 3 extra large bedrooms...
Located in a quiet street of the popular Brightwater Estate, this home will make the perfect investment and will not be on the market long. With 4 good size...
This spacious family home set on a 744msq block in a quiet cul-de-sac of Waterbury Park can accommodate the largest of families! With 4 king size bedrooms which...
If you love to entertain, this home is a must to see! Located in a quiet cul-de-sac in the heart of Mountain Creek, this home has been designed to take advantage...
Located in a quiet culdesac , this immaculately presented home is a must to inspect! Comprising of 3 good size bedrooms, the air conditioned master bedroom...
Every member of the family could each have their own space! This huge family home is set on 993sqm flat corner block complete with fruit trees. This home has...
Set on a large 834msq block, this spacious home will suit the largest of families. The master suite, ensuite and walk in robe are located on the lower level, plus...
Join the Community.
Get your local news, your way.
Update your news preferences and get the latest news delivered to your inbox.