News

Saved by belly 'button'

Bella Gray, right, with mum Sarah and sister Olivia, have some fun at home.
Bella Gray, right, with mum Sarah and sister Olivia, have some fun at home. Mike Garry

SARAH Gray is helping to organise a trivia night next Saturday but the reason for the event is anything but trivial.

The Christmas in July trivia night at the Pacific Paradise State School aims to raise funds for research into a rare, incurable disease afflicting Sarah’s young daughter, Bella.

Eosinophilic eosophagitis is one of a group of conditions known as eosinophilic gastrointestinal disorders, which occur when eosinophils, a type of white blood cell, are found in above-normal amounts within the gastrointestinal tract.

When eosinophils accumulate in the gut in response to food and/or airborne allergens they can cause inflammation and tissue damage.

Bella’s condition was not diagnosed correctly until she was 18 months old.

For the next six years her primary source of nutrition was drinking an elemental formula, Neocate.

Bella has an anaphylactic reaction to egg, fish and dairy, and suffers from asthma and eczema.

She has several other food allergies including wheat, corn and soy.

As she became older it proved difficult for her to ingest the required amount of formula to grow.

Earlier this year the decision was made to have a gastrostomy feeding device, which Bella calls her tummy tube.

She now receives her nutrition overnight via a pump in two continuous five-hour feeds of 450ml each.

Sarah said that despite some anxiety about her “button”, Bella, who turns eight on July 31, had thrived since the operation

“We have had some small weight gain already,” she said.

“The other thing we’ve noticed is the increase in her energy levels.

“It has been astronomical the difference in her.

“Even though she is still eating only small amounts of food, the 900ml at night just gives her the energy to last the whole day and she wakes up practically jumping out of bed when she used to wake up still tired.”

Frustrated with the lack of research and information about the condition, the Mt Coolum mum launched her own website www.ausee.org and a registered Australia-wide charity, ausEE Inc, offering a support network for anyone diagnosed with, or caring for someone with, an eosinophilic gastrointestinal disorder.

The Pacific Paradise State School P&C, where Bella is a student, and ausEE Inc are jointly hosting next Saturday’s trivia night to raise much-needed money for medical research as well as valuable funds for the school.

It will be held in the school’s brand new, state-of-the-art, multipurpose centre.

Trivia enthusiasts who can not gather a table of six to eight people are also welcome to book.

 

FAST FACTS

WHAT: Christmas in July trivia night

WHERE: New Pacific Paradise State School hall

WHEN: Saturday, July 30, 6.30pm for 7pm start

COST: $10 each in teams of 6-8

BOOK: Phone Sarah on 0411 539 369. This is an adults only event, with BYO alcohol permitted.

Topics:  disease trivia night


Stay Connected

Update your news preferences and get the latest news delivered to your inbox.

HEATWAVE: Towns to be scorched as temps pass 40°C

SUMMER is going to arrive at full force this week,

Chef can stand the heat

HAT'S OFF: De Ja Vu apprentice chef Brett Liesegang has been announced the East Coast Apprenticeships Food Industry Apprentice of the Year.

Coolum apprentice gets taste of victory

Local Partners

Heatwave to continue for days as temps top 40 in some areas

IF you want to experience the pure heat of the start of Queensland's scorching weather, you can't go past Birdsville.

Man builds playground entirely out of packing tape

Artist Eric Lennartson is in the process of completing his huge tape sculpture at the Ipswich Art Gallery.

VIDEO:And here's where you can play on it.

Countdown to Woodford Folk Festival begins

ECONOMIC BOON: Woodford Folk Festival is celebrating its 30th anniversary this year.  Photo Contributed

The first larger-than-life inhabitants have stepped into Woodfordia

'I need to do what I can': 65km walk for cancer patient

Karlee Robinson is walking from Caloundra to Noosa for her cousin Aaron Parker, who has terminal brain cancer.

What do you do when someone you love has terminal brain cancer?

Leo designs shocker tattoo for Tom Hardy after lost bet

Leonardo DiCaprio has designed a new tattoo for Tom Hardy

Hollywood star at home on the Coffs Coast

FEELING LUCKY, SON?: Scott Eastwood visited the Coffs Coast

Guess which Hollywood star has been seen around the Coffs Coast?

Ricky Gervais: There's 'no point' marrying Jane Fallon

RICKY Gervais "doesn't see the point" in marrying Jane Fallon.

Hacksaw Ridge wins big in first round of AACTA Awards

Luke Bracey and Andrew Garfield in a scene from the movie Hacksaw Ridge.

THE major awards will be handed out on Wednesday night.

Paris Hilton fumes at clumsy partygoers

A reveller spilt their drink on Paris Hilton's DJ decks

Winnie Harlow isn't a role model

Winnie Harlow insists she isn't a role model.

Developer's grand new multi-million dollar estate

NEW ESTATE: This is the only plan revealed by the property developer's new Billabongs Estate in Agnes Water.

DEVELOPER given the go ahead for a massive estate with 149 homes.

Couple's desperate $550K price drop to sell Gladstone home

Brian Headley and Kirstene Staib are selling their Kin Kora mansion for $750,000.

TELL tale sign of Gladstone's property market.

Banks reclaim Gladstone homes as job losses bite

LONG FALL: Property experts Heron Todd say, based on key market indicators, Gladstone is still travelling to the bottom of the market, with property prices set to get cheaper.

Property valuers say Gladstone housing market hasn't hit the bottom

The million dollar property to test Mackay's market

This Victoria St building will go to auction Tuesday and investors will be watching closely to see how much it sells for.

'High profile architect designed CBD asset' goes to auction

Prices jump in trio of mining towns

THE boost in coal prices in the past six months has triggered a house price jump in at least three mining towns in Central Queensland.

Boost in coal prices triggers a market turnaround

Ready to SELL your property?

Post Your Ad Here!